Originally Posted by Firedancer79

I really appreciate all of your kind replies, thoughts, and prayers. I believe nothing is by chance, and everyone who comes into our lives belong for a special purpose. I'm sad we've all crossed paths due to a condition like this, but I'm glad to have some people who actually know what I'm going through.

I do meditate daily, and have a beautiful and energetic young little girl, who keeps me grounded. However, I feel like I have to be strong for my daughter, and for my family, as I think it scares them more than myself sometimes. Well, I'm suffering really bad and I sometimes wish I could just be selfish and have someone to be strong for me! I don't have that in my life. My husband left me a year after I got sick, most of my friends ran away, and even my doctors seem bewildered by me. Sigh, does any of this make sense? I feel like I'm rambling.

Yes, I am on quite a bit of medication, wish I thank my lucky stars I have at this point, because it literally saved my life. Story for another time. But, it only helps a bit, and I'm still suffering a 9/10. I haven't had any med changed in over a year. So, I feel like maybe that could help but nobody is willing. Frustrating!

Thanks again. I do hope this finds everyone doing ok today. It means a lot to me that you all took time to respond, knowing how much you are all suffering. Plus, energy doesn't come easily to us, so thanks.