So sorry you had to go through all that but glad you got the IVIG treatment you needed.

MG can turn on a dime. 7 weeks ago I could function and work full time. On 6/19 it hit 90 degrees here and I ended up in the ER with shortness of breath. I got large dose solumedrol (steroids) and no IVIG and was discharged 3 days later on 80 mg prednisone. 2 days later back in the ER again with shortness or breath, more steroids, no IVUG or plasmapharesis, discharged again on high dose steroids. I begged for plasmapharesis or IVIG and neuro refused. New neuro and 7 weeks laters, still on short term disibility, cannot function, work or leave the house. New neuro finally faxed script for IVIG which probably will not start before next Monday if I am lucky.

I am glad your hospital knows how to handle MG. Getting the right treAtment as soon as possible is half the battle. How high did they bump your steroid dose back up?

The solumedrol dose relieve the immediate crisis breathing issues, but now I am stuck for 6 more months trying to wean off prednisone again. The prednisone has me so sick and weak. I am swollen like a blow fish, have loads of black and blue marks and experienced internal gastric bleeding. At this point I think the meds are worse then the MG.

I am glad you were able to get back to work so fast. I am hoping IVIG will allow me to return to work or I will have to apply for long term disibility. Please keep us posted with your progress. Are they going to put you on an IVIG maintenance dose now?

thanks
kathie