From my personal point of view, rsd specialist still can't figure it out why and how rsd happens and just try vaguely to,finds a reason but after so many researches ,saying rsd is autoimmune ot mental doesn't doe any good at all.
Instead ,we get real annoying and mad realizing this discussion is still happening in the medical fields.honestly I think ,no dr is able to tread rsd at all ,there is always something missing and that only make our journey more painful due to many changes and treatments approaches that really in many cases were unnecessary at all.
Feels confuse and disappointing is normal for us, we many time try to convince our brains to regain control and it's hard when so many new researches are coming out and we just we confused. Rsd is in fact REAL ,no matter how many studies said is mentally or autoimmune , for us who are suffering constantly day by day it's and always will be real.
I walked like many others a long road full of disappointments and dr who really care more about the benefit they will get by doing the most expensive treatment,is not for our benefit ,is for their packets and honestly ,did we get better for real? I don't even think so ,we keep,struggling and we will unless we take action and educate ourselves and speak up,never agree in something we don't believe is right ,always have questions and expect and answer,get that answer either ways,by being friendly with the dr or by being a complete .... ( bad word,you can add your favorite one) and keep insisting on getting a response and a really logical explanations.
I'm tired as many for sure of all here,but we had to keep going always hoping for better days,the mind is really so powerful,we can do so much as long as we believe it can be happens.
My last thing to add, no matter what's outer ,believe in what your hearts tells you and if you have doubts about something ,make the doctors clear any doubts but believe things can get better,only education and understanding RSD for real will let us know what is real,we are living proof ,RSD is so real.
Genlte hugs and lots of love to all,Jesika .