Kathie,
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Originally Posted by cait24
MG can turn on a dime. 7 weeks ago I could function and work full time. On 6/19 it hit 90 degrees here.
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Working nights, I am able to avoid the heat. We have also been experiencing unseasonable mild heat. On the Monday before the crises, I was out and about in the noon time temperatures. It was only 80 degrees, but it felt oppressive. Later in the week we hit 100 degree temperature beginning on Thursday and projected to go forward over the next seven days.
On Friday afternoon I open the door from my 70 degree apartment to go to the ER into 100 degree heat. It hit me like a ton of bricks. My friend's car was not air conditioned.
Quote:
Originally Posted by cait24
How high did they bump your steroid dose back up?
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A week before the crises, I increased the dose from 15 mg every other day to 20 every day. I had the Stanford appointment in a few days. They raised it to 60 mg.
My new neurologist wants this level for a few weeks, then we begin the taper again. Like many here, he prefers the dropping 6 percent increments. He also want to infuse once a month for the next 3 or 4 months to give the Cellcept time to start working.
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