Quote:
Originally Posted by TerriLHF
Hi All,
I am new here, just been diagnosed end of June/ beginning of July with CRPS in my right ankle after surgery May 20th. I think it started 9 days post-op with burning and electric shooting in 2 of my toes, but the surgeon told me that was normal post-op. Guess not!
Anyway...I would like to know if anyone has experience with Ketamine infusions...whether it be the 3-5 day process or the 1 day high dose process. Anyone gone thru the Ketamine coma process?
I use a 10% Ketamine topical lotion that helps out with my stiffness and pain when I use it morning & night, which is why I would like to pursue the Ketamine further.
I am also on :
Lyrica 300 mg a day
Topamax 75 mg a day
Lexapro 20 mg a day
Trazadone 37.5 mg a day
Vitamin D 1000 IU a day
Vitamin C 500 mg a day
Women's ALIVE energy multi vitamin & mineral
I am also looking at doing a sympathetic nerve block in the next week or so, since if I do anything with the Ketamine it will be off in the future.
The reason I am asking is two fold...I want to be fairly aggressive with CRPS because I have to have the same ligament repair/ bone spur/tendon tear/ganglion cyst surgery on the other ankle too and I would like to have a cardiac procedure done next year to close a small "hole"(PFO) in my heart.
The other reason is that I don't want to let the CRPS spread or get worse by not treating it. I do PT at home because I can't drive and my husband has to work...home PT is great, paraffin bath,movement therapy, marble therapy, warm compress...all leading up to weight bearing with a step or two if I feel I can do it that day, which I sure try! All listening to the birds singing outside. Helps with the depression.
If anyone has any suggestions on Ketamine or any herbals or rubs or any PT type moves or any happy thoughts to help with the fire burning from CRPS...feel free to post
Best to all... this is a difficult diagnosis to have for anyone, I am a active person...horse riding,showing,grooming,training,teaching...911 EMT 18+ yrs, long distance cyclist, master scuba diver, and photographer...all on hold for now.
Thank you,
Terri
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Hi,
You might check out some teaching hospitals for Ketamine infusions. I
know before my daughter passed away last month we were looking into
having Ketamine infusions at the University of Utah. A study was done
and believe continuing through 2014. Around 18/23 patients had an
improvement in pain scores of 6.7/10. The study cites duration of
treatment varied dramatically. Initial infusions were 5 days times
4 hours each day with doses ranging from 10mg/hr to 80mg/hr. Study
says all were active in physical therapy during treatment period and all
patients were greater than six months from diagnoses at the time of
first infusion.
I personally, spoke to a staff member about cost. She said many
insurnace companies were paying. I asked for a ball park figure.
of the total cost. She said 5000.00 which is far less than costs I
had researched over the years.
