Hi. I am also new to this site. I have been diagnosed with cidp too. It looks like you have one rare disorder and another extremely rare one. It is overwhelming to coordinate all that you say. I think if you start with a good neuro the rest will be made easier. University hospitals are great if there is one near you as they are a one stop shop. It helps that they share records and you won't have to go into details for every visit. There are many great people here to help.