Thread: A little Lost
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Old 08-07-2014, 03:41 PM
Lara Lara is offline
Legendary
  
Join Date: Sep 2006
Posts: 11,026
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 11,026
15 yr Member
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Quote:
Originally Posted by duanep1963 View Post
Hello,
I am new to this and look forward to having folks to talk to. I have VKH and recently diagnosed with CIDP to boot. I am having a whole mess of trouble coordinating Doctors and Neurologist and Insurance and Hospitals.

Thanks for having me,
duanep1963:
Hi duane,
You say you are diagnosed with VKH.
If you mean Vogt Koyangi Harada Syndrome, I just wanted to let you know that there was someone only recently (July) who posted here asking if anyone else had this diagnosis as it is apparently very rare.

They posted on the

Autoimmune Disorders Forum

and in

General Health Conditions & Rare Disorders
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