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Old 08-08-2014, 02:20 PM
en bloc's Avatar
en bloc en bloc is offline
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
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10 yr Member
en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
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Quote:
Originally Posted by Nervous1 View Post
Hello en bloc,

I wonder if they will take it away as well? If the doctor does not dink with the diagnosis, it should fly. He said that he has other patients that Aetna is giving problems and it is only a matter of time for me. I know the IVIg helps my symptoms and I do better when on it, of couse I do not what happens when I am off of it at this point. But, it appears that it has not really helped the neuropathy that much. I believe that it would take a alot longer than 9 months for the IVIg to do anything with the neuropathy. If re-myelination is occuring and nerves are re-growing, this would be a slow process.

Do you have noticeable symptom reduction related to neuropathic pain due to IVIg?

Thanks,
N1

The last year I was getting the IVIG primarily for the immune deficiency. We just now started ramping up the dose for neuropathy, so too soon to tell about it helping. It will take me (due to past reactions to IVIG) about 6 months to get up to proper neuropathy...they want to proceed slowly.
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