Thanks for sharing your story with us here! I kind of gave up on finding what was guilty for my seizures. I've been told it was due to aseptic meningitis I had as an infant (went undiagnosed until my fontanel swelled up), then for being preemie, then because I'd died a few times (obviously they brought me back) - all in my infant days.

My seizures really didn't show up (GM's) until I was a teen hitting puberty which from my understanding is fairly common. Now as far as absence, partial, etc. seizures; who knows how long those were around. At the time, we didn't know what we were looking for.

Anyway, your seizure frequency seems to be very high and very uncontrolled. I'd personally suggest you see your neurologist/epileptologist and look into a medication increase, change, or current testing if you haven't been tested in a while (EEG, VEEG, MRI, MRA, etc.).

It's wonderful to meet you and please keep us updated, we worry a lot.