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Old 08-10-2014, 08:38 PM
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Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Smile Hi Zec!

Welcome Aboard!

You've been through a lot and my heart truly goes out to you.
Your reluctance is perfectly normal. When I was first presented with this option I ran and hid. For 2 years! It creeped me out big time.
Meanwhile I continued taking higher doses of meds b/c my tolerance went up.
I tried anything and everything if it had any chance of helping.
I ended up back on Dr. Scs's doorstep. The trial went very well.
It covers 70% of RSD in both legs.
It was later found that one of my leads was pulled and migrated down to my lumbar region. I confess that I didn't follow the post op restrictions as well as I should've.
My only problem now is that I get bad back spasms. Not sure if the migrated lead had anything to do with it or if it's because of the progression of my degenerative discs.

If you dont have that 'green light' in your spirit and you have doubt's, perhaps you might want to wait a bit. Like Ger said tho, the trial is the best part about it.
Having RSD as well, I was told by some that there could be a chance of it spreading. This would be an important thing to run by your doctor. I haven't experienced this but maybe the possibility of this is one thing that has you feeling this uncomfortable.

Personally I feel that it is very important to feel comfortable about something like this before making the decision. Like I said, I took me 2 yrs to feel OK about it.
If you feel like you are being rushed into this, then your medical team needs to respect
how you feel. It can always be rescheduled.

I hope I haven't put you in circles about this
We're all here for you so please know that you are not alone.
I hope and pray that you feel at peace in whatever you decide.
Keep us posted....

Caring,
Rae
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"Thanks for this!" says:
anon21816 (08-11-2014), ger715 (08-10-2014), Hannabananna (08-11-2014), PamelaJune (08-11-2014)