Well, Beth (thanks, Mike), MG DOES run in families! My friend and her sister have it. I've heard of other examples of that, too.

You could try to see a neuro-ophthalmologist, so they can assess the double vision. It's as if we have to compile "evidence" as one would in a court case!

Are you short of breath at all?

Please don't be scared. MG is manageable. As long as you understand how unpredictable it is, have a good doctor and treatments, and balance activity with rest, life can be fine. Great? For some people. In my case, "great" is more of a perception than a reality.

Some MGers are having luck with Rituxan/Rituximab and going into remission for months or longer.

Did you see Dr. Howard or any of his colleagues at UNC? Does anyone know of a GOOD neuro in NC?

If you can't swallow (or breathe or move well), it's time to head to the ER, via an ambulance. But don't be scared about that either!

You really do need a neurologist to champion your care, though.


Annie