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Old 08-13-2014, 12:43 AM
russiarulez russiarulez is offline
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Join Date: Mar 2013
Posts: 173
10 yr Member
russiarulez russiarulez is offline
Member
 
Join Date: Mar 2013
Posts: 173
10 yr Member
Default Perilymph Fistula

I've been doing research on Perilymph Fistula, and came across this site - www.perilymphfistula.com.
Really liked how he described his struggles with PCS, will be on my list of things to send to people close to me who don't really get what I'm going through.

Anyone had this diagnosis?

Many symptoms correlate to what I'm experiencing, especially fluid in ears, sensitivity to vibration/bumps, etc...

I plan on getting a referral to a local doc who can do proper vestibular testing, I think I should've done that a long time ago.
__________________
12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.

Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
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