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Old 08-13-2014, 01:42 PM
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Juanitad Juanitad is offline
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Join Date: May 2009
Location: Eastern TN
Posts: 314
10 yr Member
Juanitad Juanitad is offline
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Juanitad's Avatar
 
Join Date: May 2009
Location: Eastern TN
Posts: 314
10 yr Member
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I had my thymectomy 5 years after diagnosis. I was put on Cellcept right after diagnosis and it seemed to control it along with mestinon for about 5 years. After an emotional crisis (dad died after long illness and I was his only child in the area) 5 years after diagnosis, I had my first mg crisis and started IVIG along with meds. Continued to get worse with mg and decided I wanted a thymectomy. I had been told when I was first diagnosed I was too old (50) and it wouldn't do me any good. When I had surgery at 55, I had educated myself and realized that 50 (or 55) is not too old. The surgery seemed to help for about another 5 years when I started a downward slide again. But that's another story - my point is that each person is unique and I don't think there is only one way to treat a person with mg. If she is having issues and her current treatment is not helping her enough, a thymectomy might be a possibility. She needs to discuss with her neuro and family.

Good luck with her decision.
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"Thanks for this!" says:
AnnieB3 (08-13-2014), anon6618 (08-15-2014), Panorama (08-14-2014)