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Old 08-14-2014, 11:30 AM
karenbbb karenbbb is offline
Junior Member
 
Join Date: Aug 2014
Posts: 6
8 yr Member
karenbbb karenbbb is offline
Junior Member
 
Join Date: Aug 2014
Posts: 6
8 yr Member
Default Thank you!

Wow, thanks for the support! Your comments and links are very helpful. I just picked up the test results, and they are in the normal range. My reading are as follows:

Acetylcholine receptor, binding antibody 85985980: <0.30
Acetylcholine receptor, binding antibody 85987480: <15
Acetylcholine receptor modulating antibody 85987490: 23% (reference range is <32%)

I'm still not entirely sure what most of that means, except that they were all in normal range. I was also not tested for the MuSK antibodies, which is... dumb.

I think part of the problem is that no one seems all that knowledgable of the disease. The last neurologist I saw did a five minute neurological exam, making me push and pull and squeeze, and then said it was unlikely I had MG but that I could take the blood test if I wanted to. She seemed to think that was the only test, and that if I had the disease I would test positive for it via the blood test, which doesn't seem to be true. She seemed to not consider the slurred speech and fatigue, nor did she consider the ocular muscle weakness either. I don't have ptosis, too, which isn't helping.

I'm still not sure I have MG, but it's a possibility from what I've been reading, and it would explain a lot of my symptoms. Does anyone know of an MG specialist in the state of Florida, preferably north or central Florida? I'd like to see someone who has a bit more experience with this.
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"Thanks for this!" says:
AnnieB3 (08-15-2014), juliejayne (08-19-2014)