I'm not sure where you live but Partners in Parkinson's events scheduled around the country are designed to help patients/families navigate the disease with a particular focus on getting to the right specialist. But, much is shared about the journey around diagnosis and for instance one of the break out sessions features patients sharing about how they broke the news to family, colleagues etc.

More information on upcoming events at www.Partnersinparkinsons.org

Best, Debi

PS ... the website also has a finder that helps identify movement disorder specialists by geography but perhaps you've already landed with an MDS. As Gary mentioned, that is critical.