Junior Member
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Join Date: Aug 2014
Posts: 6
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Junior Member
Join Date: Aug 2014
Posts: 6
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Hi MrsD, first time poster. I found this thread like many others I assume. Ill try to keep the post short and any advice is appreciated.
About 2 years ago I started feeling symptoms - faint weakness on the outsides of my hands feet (which I assume is per neuropothy). The symptoms gradually started to include the aura migraine types - such as difficulty speaking, trouble with basic motor skills on occasion, slight lack of balance. Then they started becoming difficulty focusing, multitasking, short term memory issues. One of the continuous symptoms throughout was a pressure behind my left eye. Maybe more of a sensation/disturbance than a pressure. But all those things added up to difficulty processing things visually. Driving certainly made a bit more difficult. Just doesnt feel like my eyes and brain are focusing 100%
Finally after about a year I decided to start getting this stuff checked out. Not sure why I didnt earlier. Could still function but started to realize not the same way I had a couple years before.
Doctor ordered the usual labs and first thing he even thought was B12 def. I got CT scan for the bigger stuff such as MS and tumors but all that came back clean. Blood work showed no diabetes and the like.
However my B12 levels were 254 (range 180-900). Doctor argued its not deficient but sometimes people become sensitive at different ranges. He ordered the Homocysteine and Methylmalonic Acid tests. Those came back 13.0 umol/L and 88nmol/L respectively. He had no comments on those other than they were normal. He told me to take over the counter B12 1000mcg and I did (cyano) for about 3-4 weeks. I didnt notice any major changes in symptoms so I quit taking it. I even told the doctor this.
This was all done back in December 2013 BTW. After that he sent me to the nuerologist. She basically started working the Migraines angle since the symptoms matched up for the most part. Took Lamictol or whatever its called for about 1 month with no effectiveness.
Next step she sent me to the Nuero Optomologist and that came back perfectly fine.
Finally at my early August 2014 visit to the Neuro (my 4th total vist) which is now 9 months after I went in for these symptoms back in December I straight out asked her before she went any further if these symptoms could have to do with B12... I said I did quite a bit of reading online about levels under 400 possibly causing nuero symptoms. More or less I almost got the impression when she re-looked at my december labs that she had overlooked my levels completely. She then gave me the liquid through the nose 500mcg Nascobal (cyanocobalamin).
I took two of the injections but after not feeling much better immediately I started doing deeper research on the internet about my symptoms. Basically just became frustrated with the lack of any progress or direction from my doctors. And now Ive ended up here. It seems now, I hope, through my own research that I may be narrowing down the causes. That being B12...
I guess my question is based on what Ive posted here do you have any conclusions or possible advice on how to read this data? I can provide more lab info if needed. I actually had lab work re-done last week to check where my B-12 levels are currently. I just started taking (based on this threads advice) a methlycobalmin form of B12 (to be exact Finest Nutrition brand 5000mcg once a day). I took my first one today.
Thanks again for any advice you can give.
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