Hey,
I can totally relate to what your going through, as I am in the same boat

I started with a neurologist and I even went to an optimologist and am waiting for more speacialized dr app. I found that like someone said in an earlier post it helps alot to have somone with you. I found the doctors listened more when it wasnt just me. Also what are your muscoe spasms like? Hope you find someone who listens.