Hi Nemsmom and Jusf... hope you have found your answers Jusf,. I too have a type of hypokalemic periodic paralysis with my diagnosis being Andersen Tawil Syndrome. Hear issues are also part of the Andersen Tawil syndrome and many eventually require cardiac assist devices. Through working with my Doctor we have discovered that I do well with a serum level of 5.4 to 6. I paralyze when my potassium levels are within the normal range. This means I must battle my bodies attempts to keep me in homeostasis. I take a medication that helps me hold extra potassium and also take loads of prescription potassium.