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Old 06-04-2007, 11:13 PM
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mollymcn mollymcn is offline
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Join Date: Jan 2007
Location: Upstate NY, USA
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15 yr Member
mollymcn mollymcn is offline
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Join Date: Jan 2007
Location: Upstate NY, USA
Posts: 227
15 yr Member
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hey rosie - the 'fitting' you described - this happens to my friend with RSD a lot, I didn't know other people with RSD had this too. i guess it's a stage IV thing (if people used "stages" for RSD anymore).
She's just started having her hands twist and turn to rock. It's absolutely inCREDIBLE how strong her hands are, because I do try to prevent them from twisting by fitting my hands underneath hers. Oy vey! I quickly decided to substitute a tennis ball for my hand because the crunching sounds of my hand bones gave me the shivvers <yet another feeble yolk>
All those scarves sound v. fetching and creative. You haven't marred the look with grey duct tape, have you? I don't know what they call this tape in England.
I am glad that you did not die from the pain. I hope you will have the alarming clavicle lump inspected for possible breakage. Don't want infection.
Are you bring any of your mates home with you on holiday? I don't imagine your sister is quite as helpful with scarves, indian food, etc.
Big transatlantic hug <non-painful type>
xoxoxo
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