Do you have an Integrative MD? An MD that can help with supplements and nutrition? There is a book called "Minding my Mitochondria" and it is good. Dr. Terry Wahls is also about to have a new book out also. The mitochondria/nerves have to get what they need so a good doctor that knows how to help is important.
It is scary and we all understand. Just remember it can get better, you just never know!

What all are you doing right now for the nerves? I might have missed that post.