Originally Posted by simplelife15

I finished my first round of IVIG on 8/7. 5 infusions over the course of 10 days.

Decision to start IVIG occurred after a flare-up where at the peak I took over 1200 mg of Mestinon in one day just to keep breathing. The Mestinon was working (with no side effects that I always get when I take too much), but the relief wasn't lasting very long. Over the course of a few weeks with this flare-up I was still in the 700-800 mg of Mestinon a day pre-IVIG. Within a day of starting I was down to the 400 range, and now two weeks out from my last dose I'm down to 180 mg/day (actually only took 120mg yesterday).

Have to say I feel great, especially in terms of my respiratory function. Actually did pre-op respiratory function tests last week and didn't struggle at all.

So now wondering...how long can I expect the benefits from IVIG to last? Was scheduled for Thymectomy last Wednesday, but was cancelled the night before because the surgeon had a family emergency. I'm rescheduled for next Wednesday and am hoping the benefits hang on that long. Do you notice that your symptoms gradually get worse as the IVIG wears off?