btw, I don't mean to imply that any of the places I tried to get an appointment with are antisemitic, if it came across that way. I'm just surprised that major universities wouldn't be willing to evaluate me for a possible disease (albeit rare outside the Jewish community), and then treat me if appropriate or setup a referral if necessary.

Everyone tells me not to play doctor, to let the experts do their work, but my current (former?) neuro is MIA and none of the ones I've contacted, outside of NY and FL, will even see me.

I do have a local appointment setup, but they don't know DYT1 is a possibility and I'm not sure whether to tell them before the appointment/ER visit.