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Old 08-26-2014, 07:46 AM
lurkingforacure lurkingforacure is offline
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Join Date: Feb 2008
Posts: 1,485
15 yr Member
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
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Quote:
Originally Posted by badboy99 View Post
I'm with you Gerry!
There are many PWP and their families who are becoming increasingly frustrated with what MJFF funds. I think most people have an appreciation for how complex PD is (or appears to be, one day the paradigm will seem so simple, I hope) but. still.

I'd love to see some of the mainstream PD advocacy groups pitch in on this and support it- we should only support those research groups that support the projects we do (speaking on an individual level here, not trying to crowdfund anyone into anything). But as everyone knows, once PD is cured, even with something like this which is merely a "turn back the clock" treatment, those in the field have a new career choice facing them. People being sick is lucrative to the mainstream advocacy groups just as it is to big pharma, for every illness, not just PD.

Sorry to be cynical so early in the morning, but treating illnesses is big business for a lot of people. I am so grateful these brave souls are putting this project out there and hope and pray it will prove to be something that can help us all. If it does, we need to be thinking about how those who get helped by it can raise money to pay for the treatment for those parkies who cannot afford it
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