So I saw the Neuro-surgeon on Thursday and he confirmed I have tethered cord syndrome, BUT he acknowledged that he has never preformed the surgery and that he will not do it. He also ordered more testing MRI of my full spine and a brain scan. He said he wants to get a full picture and to make sure there is no other issue going on as well due to some of my symptoms. He said he didn't want anyone to piece-meal my health. Today is Tuesday (4 working days after seeing the doc) and I have already been approved by insurance to have all the required tests and an appointment for the test and appointment to see the doc again to review the tests and discuss my options. I feel confident that this is a good doc/person and that he will help me make an informed decision and help me find a Sx with TCS experience if needed. Though I'm still anxious I don't feel crazy and alone anymore. Thanks for listening!