Originally Posted by moonstar54

Hi All,
thank you for your replies, I really appreciate it so very much.

Well, I saw my Ortho surgeon yesterday to get all the results of all the other specialists he sent me to, tests that were done & the MRI's I've had.
One of them is good news, the rest is not, so, the situations goes on further....

I was sent to a Gastro for bowel incontinence, he determined I have nerve damage.

I saw a Urologist which had me do a ultrasound-renal & my kidney's are fine, no issues there & this was the only good report I've had so far, the only one & I can't tell you how happy I was to hear that, it is one of the most important tests. He did a urine test & it showed white blood cells so it was sent out for a culture. It came back negative but, leaves me wondering why there are white blood cells in my urine?? He also had me do a urodynamic test & she explained Everything she was doing as well as watching the testing on the computer. She said my bladder would not stop jumping around and she could only get a small amount of fluid into my bladder because the pressure was so high. She also said that my urine flow coming out was not right, it's basically a dribbling flow. Then her end result was, she said that I have nerve damage. I have a problem with light urine leakage sometimes.
There is another test that the urologist will do on Sept 17th, a cystoscopy and will combine this test with the results from the urodynamic and I'll have the results that day.

Finally, he sent me to a Neurologist. She was the one who sent me for the brain MRI. During that visit she went over the MRI's I already had done, Cervical, Thoracic & lumbar, she said she was very concerned with my neck & C3-4 bulging right above where I was fused and it's pressing mildly on the spinal cord. She said she was going to call my Ortho surgeon to discuss it. (She never called him he told me). Then she sent me to a speech pathologist for the swallowing problems I have. I saw her this past Monday, 2 days ago & she wants me to get a modified barium test which is done by a radiologist. I have to schedule that. She did a physical exam also and is concerned about my "brisk" reflexes in my legs (My Ortho had mentioned this to me before) and arms.

So, my Ortho surgeon says this; his most concern was the MRI of my thoracic, there's a dorsal mass effect on the thoracic cord at T6 secondary to a oval cystic structure 2.2mm in length and 7mm diameter. There is also loss of volume of the thoracic cord at this level.
Then Additionally there is a component of ventral impression on the thoracic cord at the T6-T7 level secondary to a right paracentral disc protrusion.

He referred me to a Neurosurgeon because he does not specialize in cysts (tumors) that's on my thoracic so I have to make that appointment. He said he thinks my pains, numbness's, tingling etc. are coming from the thoracic issues, about from my breast area & down.
Also he doesn't specialize in the Brain & wants the Neurosurgeon to go over that MRI with me.

He said my neck, he could do the surgery on. He'd take the existing plate out & fuse C3-4 (disc herniation pressing on spinal cord), then there is stenosis at C5 and C5-6 (prior fusion was suppose to fix that!) and C6-7 there is small central disc protrusion and annular disc osteophyte complex. He'd fuse this level too.
Funny, back when I had ACDF surgery I got a 2nd opinion from a Ortho & he suggested doing all 4 levels but, the Neuro who did the surgery talked me into doing only 2 levels because he was concerned about the loss of range of motion and said I may or may not ever need another surgery! I should have listened to the Ortho & did all 4, now I am facing another neck surgery!

My lumbar MRI he said looks good. I asked if it's possible there are some nerves tangled up or some compressions after doing that surgery & the MRI doesn't show nerves so what test will? He said a CT scan but thought it's all coming from the thoracic again and wants me to see the Neurosurgeon first.

I think that covers my results up to now. I'm sorry that this is such a long post. I am so overwhelmed right now & wish I could crawl in a hole & die.
I am NOT suicidal, I am just so depressed over all of this and my brain is spinning out of control. All of this has been sooooo complicated!
I feel so lost and alone. I don't have a support system. No one understands my pain or my issues and all of this makes me feel sooooo sad and makes me cry.

Thank you for reading this & if anyone has any advice they could give me or has any questions, Please let me know.