Quote:
Originally Posted by redtail
I was just wondering does anyone else who has MG have fibromyalgia.
I went and saw my neuro on Friday(always such a pleasure NOT)
He mentioned my arm and leg pain (as my neuro nurse whom I see had written to him, and had mentioned it in her letter) he asked if I still got it, I said yes, and then he went onto another subject. Today(wednesday) I got the letter he sends to my GP and a cc to me, in it he says "..... a background of generalised muscle ache and pain and fatigue, which is probably a form of fibromyalgia (relationship to MG)." and thats it nothing else, needles to say Im a little confused  . I will talk to my neuro nurse, shes wonderful in looking after me and answering all my questions my neuro doesn't have time to answer. But I thought Id see if anyone else has these 2 diseases?!?!?!? |
I do. My neuro tx /Rx = cymbalta, mestinon, lortab, Valium. Vitamin therapies= turmeric, b-complex, magnesium and zinc, multi-centrum
Symptoms similar to yours, but have severe weakness and pain combined with vision, swallowing, speech, muscular weaknesses daily except for maybe an hour mid day. Time-release mestinon combined with 60 mg mestinon every 3 hrs (not every 6hrs). Allows less potentiation since the fibro and mg aggravate / potentiate each other increasing pain and weakness, etc among other symptoms, and now am having more tardive dyskinesia from mestinon, so Valium and magnesium reduces the side effects of the mestinon. It's requiring more and more mestinon in order to see breathe swallow speak function etc, becoming more resistant. Good luck. I'm fortunate to have a great team of six specialists and therapists who treat this tricky combo. Best.....r-