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Old 08-30-2014, 02:50 PM
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Panorama Panorama is offline
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Join Date: Jan 2014
Location: Silicon Valley
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Panorama Panorama is offline
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Join Date: Jan 2014
Location: Silicon Valley
Posts: 263
10 yr Member
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Quote:
Originally Posted by neutro View Post

Donīt forget to drink a lot before and during IVIG and insist on a slow infusion rate!
Maurice,

I was infused in the hospital for 5 days. The first day at 100 mL/hour, the next three days at 200 mL/hour, and the last day at 580 mL/hour.

The ICU supervisor was visiting the Neuro Unit and told the RN that this higher rate was not a problem. Another RN came to change a bottle later, and she did not like the higher rate, returning it to 200 mL/hour.

I did not have any issues this first time around with IVIG. I am scheduled for two days next week as an outpatient. I have read where others had no problem with the first infusion, but did have some issues with later infusions.

-Mark-

P.S.: Your assessment that my Prednisone taper was too aggressive appears to have been spot-on. Annie, too, made the same judgment. I thought of both of you, and your advice, while in the hospital.

My new taper goes down (from 60 mg) 6 mg each two week period. I also started taking 1500 mg of Cellcept each day. `

BTW, how do you say "I told you so" in French.
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