Quote:
Originally Posted by amkxoxo
So like I have said many times on this forum. I am beyond grateful that I do not have severe pain. But I still have this condition and it affects my life. Ever since it started affecting me I have been way more away of things I didn't notice before. Any little abnormal thing that happens with my body I try and figure out now and most times I consider it CRPS. I have had a bit of forgetfulness since I was injured. I am unsure if this is mere forgetting small things. It got to the point where many times in one week I will leave my home and get in my car and forget if I locked my house and I often walked all the way back to check. Once in a while I didn't lock it but mostly I did. It seems to happen a lot with little things like locking my house, car, and embarrassing enough flushing the toilet. I always have to go back and check, and it seems more than normal. This has been going on for about a year now. Some days I wake up and I just don't feel quite right. Its just I feel weak and tired. Not in pain, just sometimes I feel like I need extra rest. I have woken up from a decent night and felt like I haven't slept a bit. This isn't all the time now. I have a hard time sleeping at night. I am a night owl.
My problem is that my symptoms seem to change so much. Some times I feel great, sometime I feel like crap, some times I have this and not that and they are all random. I could go days or a week without burning and then it starts up randomely and happens everyday. My family doesn't understand. They make fun of my ailments. "your always dealing with something different" ....well Yeah. I think they don't believe me. I don't want to vocalize anymore because I feel like its just not serious to them and it is to me. I am so grateful to be as healthy as I am. I think they think I exaggerate. I don't know how to handle this.
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I unfortunately am in the same boat. My Mom just does not get it. I am not sure if she thinks I am faking my pain or what but she is hypercritical of me and constantly telling me to do things I can't do then my husband has to step in and say he will do it. I thank my lucky stars that my husband is so wonderful and supportive but I can't understand why my Mom just doesn't understand.