View Single Post
Old 09-02-2014, 08:00 AM
Marlene Marlene is offline
Member
 
Join Date: Apr 2007
Posts: 498
15 yr Member
Marlene Marlene is offline
Member
 
Join Date: Apr 2007
Posts: 498
15 yr Member
Default

Here's the sponsor of the first study: Sponsor(s): Bayer HealthCare Pharmaceuticals

Not certain about the other one.

Regarding your questions:

1) Do you agree that I should play it safe and stay away from ALCAR?

Since you are no longer on any chemo, I don't feel you need to play it safe. I don't think you would use the doses they are talking about anyways. Also know that as you heal, you may find an increase in symptoms for a week or two and then more relief. As the nerves wake up, new sensations happen.


2) Do you have some reason why you think other supplements that haven't been well studied with Chemo Nueropathy, such as RLA and CoQ10, are safe and I should continue with them?

I don't think you will ever find a good, solid research for this. It's too costly, and too difficult to design a study where the people all started from the same nutritional baseline and were able to maintain it throughout their treatment. You don't know if any in the study were diabetic or had other issues. It is very difficult to combat the ill effects of chemo with supplements. Those drugs are so strong and disruptive. And everyone responds differently to chemo.

3) Do you think that Neurotalk is mostly diabetics and I have to be extra careful in assuming that many of the discussions here cross over to Chemo Neuropathy?

The short answer is 'no'. My husband's PN is chemo induced and he has benefitted greatly from what we've learned here. In fact, there's a huge crossover to bone marrow failures, which is what he had. I found that everything I learned here, could also be applied to his healing after treatment.


Hope this helps.
Marlene is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
antonina (09-04-2014), hopeful (09-03-2014), Idiopathic PN (09-10-2014), Sallysblooms (09-02-2014), v5118lKftfk (09-02-2014)