Quote:
Originally Posted by pingpongsis
Are there others of you out there who have parents and/or siblings who also have MG? Do you go to a doctor who specializes in these types of cases?
Is familial MG different than "regular" MG in how it is diagnosed, symptoms, and how it is treated?
This board is great! Thank you everyone!
Beth
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My sister has MG. she was Dx with it before me. She could not open her eyes and was tired all the time. They did blood work. Came back negative.
She had a thymoma, had it removed and was put on mestinon.
I was already Dx with MS. We saw the swam Neuro. Doc. I was having increasing symptoms of weakness, Diplopia, muscle fatigue which improved with rest. They decided I did not have ms but did have MG.
Years went by on mestinon and prednisone. 2014 had exacerbation of ms. Proven with MRI.
I was resistant at first but went to see some specialists in both diseases and received both Dx