Originally Posted by randomguy

Thanks for the reply. It's just perplexing to me as to how little doctors really know about PCS. Not one person out of the 5-7 people I have had appointments with in the medical field have been able to elaborate more on PCS than just "it takes time." I have met with GP's, Specialists, sport injury professionals, homeopathic, concussion focused physiotherapists, etc and no one really knows what's going on with me.

Seems as though each time I have a visit the time of healing goes from several days, to several weeks, to several months and now "wow, you have the worst case of PCS we have seen and it may be something that you need to live with for several years." Very comforting.

Insurance companies are also incredibly difficult to deal with when going through this. The irritability on my end doesn't help when the insurance company brushes my condition off like it's no big deal and rude about it. I'm just very fortunate that I have SOME money coming in from an insurance company, which I'm sure is more than a lot of people experience and I truly feel for those people. PCS is a terrible life altering condition and as mentioned before, really needs more attention and research. Since my injury/injuries, I can hardly watch professional sports and cringe when I see a hit in football/hockey.

I have mentioned it in previous posts, but if you have yet to try natural source Gravol (if available), try it for nausea. The only active ingredient being a potent dose of Ginger extract. It's helped me immensely and no side affects and I can be taken regularly. SERC, aka Betahistine helps when I have a "dizzy" attack and the only thing that has helped enough to keep in the event things get bad. The SERC does give me a mild rash on the face when taken however. I only take when I absolutely have to, which is usually 1-2 times per month.