Hi Muse - welcome!

Regarding triggers - there are so many things that trigger increased pain for me personally a few that stand out are: temperature fluctuations up/down of more than 10 degrees, tactile stimulation, even the slightest bit of cool air touching my legs, busy environments, emotions, vibration like from riding in a car, noise, being startled, taking a shower.. oh the list goes on. Unfortunately avoiding all these things will only make it worse..

Here is a doctor who I've seen recommended by others in your area: http://www.theportlandclinic.com/doc...k-kallgren-md/

Wishing you luck in finding a good care team!