Think one of Hannies problems is her location. No good neuros evidently in her area. Your post was super, but what if she can't find a this type of special doctor in Ireland? Her GP is at a loss and hit or miss on a doctor isn't a good idea. Does NT. on its cyst site list doctors in that particular country.? Is there an international site for this? Anyway I am trying like you to help Hannie. I know so little about this condition, but I sure know being alone with a problem isn't so fun. Thanks for your post to her. ginnie