So, even though I have a number of the symptoms you guys get, my injury is primarily acquired, and the disturbing symptoms upon waking and the accompanying dagger like pain/burning/tingling/itching which spreads through body is my biggest problem
I am seeing the Deep Brain Stimulation surgeon but more so that he could guide me in the right direction than do surgery. Appointment is on 19th.
I will let you know how it turns out.
NYU is supposed to be one of the best in the country with an excellent research department too. I'll see what they can do.