Hi Richard
Glad you've finally got a diagnosis. There are a few of us from UK on this forum occassionally.
I'm not sure if it's harder for us to get diagnosed in UK but it certainly took me months to get my diagnosis and surgery for my neurogenic and arterial TOS. The surgeon who did my op was at St Thomas' but is now retired. 6 years later, now seem to have developed venous TOS and having to play the same diagnostic game again...am told there are now specialist surgeons at St George's if you are based in London?
Jenny
Quote:
Originally Posted by richsch
Hi, my names Richard and after four years of countless scans, many different so called "experts" at many different hospitals I finally have a diagnosis of bilateral arterial and neurogenic TOS, and boy has it improved my mood! I was seen at three London hospitals, kings college hospital, st Thomas, and the royal London hospital, all to no avail, then I got a letter from a Mr rix, a vascular surgeon at the buckland hospital in Dover, I have far too many symptoms to list but it all started with a felling I was having a heart attack, chest pain moving up to the throat, getting light headed spreading down arms and a pain down the left arm, first doctor I saw wasn't very understanding so I had to change doctors to get things moving, so if you think you have Tos, don't give up, even when your told by some of the country's best surgeons that " you can't possibly have Tos, it's far to rare", KEEP ON FIGHTING!!! **.....thanks for reading....Rich
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