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Originally Posted by eevo61
Thanks so much for your Inputs and links,no one before had gave an specific answer ,I am glad and thankful you did and know as well many others will get benefits from your Inputs.
I also noticed ,several sessions are ended but sound fine at least is not injected on your spine like the lumbar block in my case for lower limbs but promising and sure I have now some tools to have that talk with my new pmp this week ,hope he consider a new therapy for my rsd that is spreading in certain areas for a while,the scs works the areas that was suppose to take care but is hard to handle scs in some days .  gentle hugs to all and again thanks so much for your help,also let us know how it goes lately ,ok? Best wishes and lots of love ,Jesika . |
My 12-year-old does the ketamine outpatient infusions 4 days a week (for 4 hours) and has done the hospital inpatient infusions 5 times now. They have been successful each time for her. The infusions are pretty easy. We go in at 8am, she's hooked up to an IV pump, the nurse inserts the needle into her MediPort (we had THAT installed for her after deciding that although the PICC lines were so easy to use, the care and maintenance were a lot of work and her skin was too sensitive), and she is given a 1mg tablet of Ativan, a 2mg tablet of Clonidine, an IV bolus of Toradol, and an IV bolus of Zofran (both before and after the infusion). The infusion nurse then injects the appropriate amount of ketamine (it differs for each patient - Maddie takes 1200ml/4h) into the sodium chloride solution, which then drips over a period of 3.5 hours. After the infusion is done, the needle is taped down and covered for the next day's infusion (as it is for the other patients - they do not remove the IV daily).
She was diagnosed with RSD/CRPS on 3/23/14 and it's been a nightmare for us. We finally got her medications set. She also takes ketamine orally twice a day in the form of a lozenge that was specially compounded for her at one of the pharmacies here. Perhaps that's something that the doctor could think of for you as well? Oh - we are in San Antonio, TX. Our doctor is Donald Bacon. He's a pain management specialist/anesthesiologist and works with RSD/CRPS patients all the time. He has a ketamine infusion room in his office - the only one in the city.
I hope this helps you and others around us!!!
Catherine