Junior Member
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Join Date: Sep 2014
Posts: 6
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Junior Member
Join Date: Sep 2014
Posts: 6
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ALS paranoid, am I crazy?
Hey all,
I've been creeping on the forums for a couple of weeks. Reading over testimonials and replies.
My story; one night about 4 weeks ago I was having trouble with my hands. They felt numb, and I was having pain up my arms.
The following morning I woke to find that both my arms, particularly the left was feeling very clumsy and still very numb. As the days went on, my hands were hurting and my clumsiness continued. I had a hard time typing correctly. I'd grab or reach for stuff and totally slip on grabbing / touching it.
One thing that was weird about my issue was caffeine really really made it worse. My hands would be very shaky and my whole body would feel like it had a small volt electricity going through it. I felt out of control of my movements.
I went to a doctor who referred me to a neurologist. They did an EMG, zapping both arms, then focusing with the needle test on my left.
The neurologist said I had nothing to worry about, no ALS, and he seemed very confident about this. But he was worried about carpal tunnel, especially in my left arm. So I stopped biking and I stopped drinking anything with caffeine.
Over the past two weeks my symptoms haven't improved, but rather gotten a little worse and spread. New things happening left and right.
My legs are feeling fatigued now randomly. I'll wake up in the morning and my thighs will feel like they are recovering from a workout I didn't do. Same with my arms. I could just be sitting and watching tv and one arm or another will start feeling like they are burning. The location is in the upper arm and fore arm randomly. My hands are always a little shaky now. If I hold my hands out straight I can visibly see them shake.
So basically I am getting fatigued sensations all up my arms and legs.
I get like zaps down my legs and in my hands. Not twitching, but like getting shocked randomly on a part of my body which makes it move hard and fast suddenly for no reason.
I've also been having a lot of stiffness in my hands randomly which comes and goes.
I constantly seem to have a dry throat recently and my throat will get an uncomfortable feeling like it is closing up a little, or my mouth will get a zap, similar to that which I get in my lower body and hands.
I am also noticing my issues seem to feel worse towards the end of the day. I've been looking forward to sleeping because by end of the day, my arms are so sore and I am annoyed by the zaping.
All of this has started up in the past 4 weeks.
EMG was good aside from start of carpal in left arm. I got blood work for celiac, lyme, and a few other standard issue blood table checks. All clean.
My issues seem to be getting worse. The mouth / jaw stuff in particular only flaring up within the last week. And my legs deff feel more fatigued / burned than they did in the beginning.
I am not sure what is wrong with me. The doctors have pretty much said I am fine, but I don't feel fine.
I haven't had any muscle twitching, I haven't had a foot drop, altho I've felt clumsy with my legs as of late.
No visible muscle wasting. From what I can tell, I have no issue using my hands once I get over the clumsiness. I can open jars, doors, etc.
Honestly my body worse / issues more apparent in a sitting position.
I ran across and back a grocery parking lot today when I realized I left my wallet in my car, and my legs felt fine. I didn't feel winded or drained. I also attended 2 town events recently which involved a lot of walking around to various booths. Again, no issues with walking / standing, other than feeling a little off balance at times while standing.
Sorry for the long long paranoid post. I know ALS is super serious and I wouldn't come on here looking a diagnosis from anyone. I just want to know if anyone else was having similar issues and what your diagnosis was.
Do my issues sound anything like ALS or a neuro disease?
I am going to schedule an appointment this week with my doc and see if we can get to the bottom of what is going on with me.
The paranoia and anxiety from this has been affecting my work. I just need to figure out what is going on and having people to talk to about it besides my wife would be nice.
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