Has anyone else had bad...terrible spasms lasting for many hours, after injections? One nurse said it would take a bit for my body to decide how it would react and I shouldn't be concerned. The next nurse said she had never heard of such a thing, spams yes, but not as widespread and not as long lasting.
My first injection was fine, but it was on my left arm which is pretty messed up as far as nerves and such goes. The next shot was to my left arm, that's when it became "*^%,!|€{\!!" Owww... Was struck with, what felt like a million fire ants doused in kerosine and lit on fire chewing their way through my arm as they died, burning sensation... Within five minutes every muscle in my arm, hand, up the neck into the lower jaw and down around the back to across the front of the ribs, tightened up, knotted up and pretty much put every joint through the wringer, lasting about 6 hours till I finally went to bed and fell asleep.
So I spoke with the first nurse who basically said, different sites different reactions, the body will also learn and chill probably.... Alrighty, so the next injection was to the abdomen. Easy peasy, and with great faith the nurse was right, no reason to think....$&@@$&)'!!+*^%%++}{]]*+++#?!?????!!!!!!"
The abs locked up, the chest locked up, the back went into crazy psycho-spasms the hips locked up, I couldn't even cry or laugh through the pain because the slightest quiver to the breath was indescribable pain. But hey in only two hours I was able to fall asleep, and the next morning I'm pretty sure I was able to make out the license plate of the truck that hit me... C0PAX3???
So I called the neuro and the nurses, neuro suggested maybe half a dose and see, that when the 2nd nurse said she'd never heard of a reaction like that.... So Friday I did the half dose in the left thigh, really hoping that like the left arm all the nerve issues with my legs would save me!! Bwahahahahaha yeah right! Left leg locked up, which locked up the hip as well and since the hip was spasming and locking up the back joined in.
I actually had to pull the back brace out of retirement and strap it on this weekend while spending most of the weekend in bed flat on my back with the legs propped up, not entirely confident that the spasms had cracked, chipped or splintered one of the vertebrae since it really did feel like it had. This morning is really the first day that I'm sure it really didn't aside from just rationalizing the situation. One of those "if I didn't know better...."
Still, I don't really want to change meds. Ridiculous as that may sound, but of all possible side effects, copaxone does seem like the safest bet there is, and if this is to be the worst side effect of it, so be it, it's just pain. Sure it's intense, crippling would love to meet my maker and probably give him a few choice words while I was at it... Pain but only pain all the same. I've learned to cope for the most part, don't cry, don't scream, don't hold your breath, don't tense up, breathe in, breathe out, it'll be over when it's over and not a second sooner.
I can deal with it...I'd rather not... I'm (almost) hoping that someone else has experienced this as well and it got better for them over time. Then I can go on willy-nilly injecting myself with liquid torture, just taking comfort in the fact that one day I'll do a shot and ahh it's fine. If not then... I'll still continue to inject myself with liquid torture, though I'll be more inclined to strap on a pair of mouse ears before each injection