Doug. Try to get a referral to Dr. Kieran Murphy in Toronto. He is an interventional neuroradiologist who deals with Tarlov Cysts. He can operate on Tarlov Cysts that have a narrow neck. Dr. F in the US can operate on both types.

Dr. Murphy is going to be starting clinical trials soon for a new procedure on Tarlov Cysts. At the very least he can justify your pain is real.