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Old 09-17-2014, 06:21 AM
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
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glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default Personally--

--and this is just my own, somewhat unscientific, somewhat biased, formed-by-collection-of-anecdotes-from-many-people-over-the-years-opinion, there seems to have been more success for many at finding a diagnosis at some of the neuropathy specialty centers--Cornell Weill/Columbia Presbyterian, Jack Miller Center, Johns Hopkins, Massachusetts General, Jacksonville Shands--than at Mayo for many.

Mayo is a wonderful place for reasons aformentioned, but I think some of the facilities above may have somewhat more expertise, reseach-wise and clinically. into neuropathies. Johns Hopkins is where skin biopsy was invented, Cornell-Weill has done a lot of work on autoimmunity and neuropathy (particularly as regards monoclonal proteins, neural antibodies, and celiac), Jack Miller does a lot of research into amyloidosis, etc.
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