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Old 09-17-2014, 10:20 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Mike, I think you need to see an endocrinologist, too. You could have Graves disease (thyroid disorder).

Fasciculations are not a symptom of MG, but can be one of thyroid disorders. Or electrolyte disturbances. Or other neuromuscular disease (yeah, I know you probably thought of ALS).

Fatigable weakness is the hallmark of MG. Muscles are weaker upon exertion and relatively better upon rest/sleep.

Ativan helped? I hope you won't be offended by this, but are you generally a nervous person?

So, when you were in the hospital with breathing problems, did any of the genius doctors think to check your oxygen saturation? And not only while sitting, but while walking? Did they think to do a beside spirometry or a peak flow meter reading?! If you have to go in again, ask them to do objective measurements of your condition, not "guessing."

Do your eyelids droop? Look in a mirror and check. Do you have double vision? Hold your pointer finger at arms length and then bring it in slowly to your eyes. Do you see one or two fingers? If you close one eye, do you then only see one? MG double vision is called binocular and when you close one eye, it goes away. That's because the muscles of the eye area become weak to varying degrees and focus the eyes somewhat differently.

It couldn't hurt to ask the endo to check your vitamin B12 and D, too.

You probably have more than one thing going on, which means needing more than one specialist. The most concerning thing is your breathing and the thyroid issue. Don't hesitate to dial 911 if you can't breathe well, okay?! And then ask them to do the above breathing tests!

They can also do an Ice Pack test or a Tensilon test in the ER, if you have ptosis. And they can order the MG antibodies (AChR and MuSK).

BTW, have you ever been bitten by a tick or been in the out of doors lately? It could be Lyme Disease, too.

I hope you can get this figured out soon. It's not nothing and they need to take you seriously!

Don't be scared, just get better help.

Annie

Last edited by AnnieB3; 09-17-2014 at 11:41 PM.
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