Quote:
Originally Posted by TerriLHF
Hi again,
Wanted to let you know I just had my 2nd high does(500mg) Ketamine infusion therapy outpatient done 2 days ago...pain level is a 1 still so far. My infusions have been 4 weeks apart for now, this one could have been 3 weeks but I decided to tough it out 1 more week for some reason. Still on 300mg Lyrica, 75mg Topamax and other meds...hoping to stretch this one out for 4-5 weeks.
Hope your treatments are going well!!
FYI...I am being treated at a military hospital so treatments maybe done differently.(? not sure the difference between private and military.)
Best to all....Terri |
That's awesome that you are able to stretch your treatments out so far Terri! I am jealous. Do you mind me asking where your CRPS is at and for how long you have had it?
I, too, receive the "high dose" outpatient infusions, but mine are every 2 weeks and the longest mine has lasted so far has been 10 days with a zero pain level (like I am in a "mini remission"), Each time my PM has upped my infusion (one before was 500 mg). My last infusion was 600 mg(this week). For my CRPS meds I take 600 mg of oral ketamine every 8 hours, along with 100 mg of Topamax, 12 mg of Zanaflex, 70 mg of Fosamax once/week and 3 mg of Clonazepam. I am waiting to get into a 5 day inpatient ketamine program, which does not start until the beginning of next year. My PM is highly recommending this for me and he believes I have a true shot at remission. My CRPS started in my left foot and ankle and has spread to my entire left leg and now the thoracic area of my back (due to a sympathetic lumbar nerve block). My symptoms started in late December 2013 and I was diagnosed via a 3 phase bone scan in February 2014.
Best wishes with your infusions and I hope they work for you and you are able to live as pain free as possible!
~Loves