Thread: exciting news!
View Single Post
Old 09-18-2014, 06:14 PM
SloRian's Avatar
SloRian SloRian is offline
Member
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
SloRian SloRian is offline
Member
SloRian's Avatar
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
Default

Celiac does NOT sound like something you want to have, esp. with RSD It sounds like a real pain to have to be so aware of everything you eat, with major consequences if something slips by. I'm sorry to hear that. It sure is hard to fight more than one difficult health issue I'm also fighting fybromyalgia and CFS plus today I just finished my last chemo for ovarian cancer - hooray! (and my prognosis is really good because we caught it early). I had an atypical RSD experience - I tore ligaments in my left foot and had to have extensive surgery, then started with the typical RSD symptoms a few months later, and my very sharp podiatrist had heard about RSD and immediately sent me to a pain specialist. I was going to get my first lumbar puncture when the guy retired and sent me to another doctor. Then before I got the puncture, I ripped my shoulder up and had to have another major surgery and the RSD spontaneously went into remission and has never come back. Then a few years later, my daughter broke her foot and unfortunately went into the same pattern but hers stayed, and spread over her whole body. Then into the lumbar punctures, etc. that I talked about a few posts above.

Anyway, I'm glad to hear it's the Utah doc's primary treatment! And I see that he's certified - another good sign. I remember talking to his office, too, and they were more-than-average helpful and professional (I called around to all of the offices listed on the Calmare page when I was doing some research). That sounds like a VERY good sign. Let us know how it goes, please and if it does't work for you, then I'm really glad to hear that you're cleared for ketamine and don't have to fight insurance.

And that just reminded me that I have to call two medical billing places and tell them that my insurance advocate has my permission to talk to them - one of those really frustrating situations where you have surgery (I had to have 3 surgeries during the 5 months of cancer treatment) and your main doc is cleared with insurance, but they pull in an assistant that is NOT cleared! SO frustrating to fight it!!!!!!! My husband's company got an insurance advocate a few years ago that the employees can use, and it has been SO helpful. It takes away a lot of stress.

Well, enough babbling - I need a nap now! I'm just so buzzed on steroids from the chemo that I'm climbing the walls I hope I can get at least some rest.

Last edited by SloRian; 09-19-2014 at 01:40 AM. Reason: fixed some paragraphing
SloRian is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (10-05-2014)