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Originally Posted by LovesTerriers
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That's awesome that you are able to stretch your treatments out so far Terri! I am jealous. Do you mind me asking where your CRPS is at and for how long you have had it?
I, too, receive the "high dose" outpatient infusions, but mine are every 2 weeks and the longest mine has lasted so far has been 10 days with a zero pain level (like I am in a "mini remission"), Each time my PM has upped my infusion (one before was 500 mg). My last infusion was 600 mg(this week). For my CRPS meds I take 600 mg of oral ketamine every 8 hours, along with 100 mg of Topamax, 12 mg of Zanaflex, 70 mg of Fosamax once/week and 3 mg of Clonazepam. I am waiting to get into a 5 day inpatient ketamine program, which does not start until the beginning of next year. My PM is highly recommending this for me and he believes I have a true shot at remission. My CRPS started in my left foot and ankle and has spread to my entire left leg and now the thoracic area of my back (due to a sympathetic lumbar nerve block). My symptoms started in late December 2013 and I was diagnosed via a 3 phase bone scan in February 2014.
Best wishes with your infusions and I hope they work for you and you are able to live as pain free as possible!
~Loves
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I have CRPS in my right foot,ankle,leg and hip. Started after ankle surgery in May 2014. I was supposed to have a lumbar nerve block done a month ago, but I was diagnosed with a DVT in my right leg and put on Xarelto(anti-coagulant) so no invasive procedures are allowed until I am off of the Xarelto. This is why My pain Dr has me doing the Ketamine infusions so early in my treatment.
I should have done my ketamine treatments 3 weeks apart, but I wanted to see if physical therapy, mind-body therapy and Qi-gong type therapy could calm the fire...too early in my education still.
Wishing all the best of luck in your quest of peace and stillness with your RSD/CRPS.
Terri
