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Old 09-19-2014, 04:24 PM
HarryDresden HarryDresden is offline
Junior Member
 
Join Date: Sep 2014
Posts: 59
8 yr Member
HarryDresden HarryDresden is offline
Junior Member
 
Join Date: Sep 2014
Posts: 59
8 yr Member
Default My history sense onset, any ideas what my next step should be?

Below is a history of events to the best of my memory. If anyone cares to read it and share any suggestions on my situation that would be great. I know my current condition is something to be really happy about compared to nearly everyone else. My hope is to stay in as little pain as possible and i'm not sure how to proceed with my next steps. I know the earlier you seek certain treatments the better.


5/25/2014 - Predicted injury date. When i dropped weight on right foot. 2nd digit toe clearly broken.

5/25/2014 - 6/24/2014 - regularly walking about to and from house and to and from job. At both places I was able to elevate my foot. On occasion had to walk further but not regularly. Wore sandals and stepped only heal. Buddy tapped toe. The pain at this point was probable around a 2-3 if I stepped poorly. Otherwise, if elevated it was hardly present (0.5). I don’t recall it ever being warm. Toe was swollen. I believe the area was always balanced. Not sure if my toes were stiff. Somewhere in here the worse pain was around a 4-5 when i wore shoes and couldn’t elevate my feet.

6/24/2014 ~ saw dr. K. He diagnosed that the toe was broken. Recommended a shoe (not sure of the technical name) to minimize movement. I don’t end up getting the boot tell aug 8th... because I wasn’t sure why it would help. In retrospect this was a terrible idea.

8/1/2014 ~ internship in ----- ended From this point forward I had little to no walking or driving or anything on the toe.

8/1/2014 - 9/3/2014 - between these dates I did very little walking. Maybe 10-15 minutes a day with maybe 2 hours of driving a week. Pain was around a 2. Walking would result in throbbing. Elevation eliminated pain and left just my toe with a tingling sensation. This is when i noticed that things seem to get worse late in the day.

8/7/2014 (ish) ~ got boot that dr. K recommended

9/3/2014 ~ second visit to dr K ~ he suggested it might be rsd/nerve damage/etc... he ordered a bone scan at hospital


9/10/2014 ~ bone scan done. results were as follows: Compression None. A triple phase bone scan was performed following intravenous administration of 26.9 mCI of technetium 99m MDP. Spot imaging of the bilateral ankles and feet. Imaging during the angiographic phase demonstrated no abnormal activity. The blood pool phase demonstrates normal distribution. Delayed imaging demonstrates mild asymmetric uptake, right greater than left. However, there is no focal abnormality identified. There is symmetric excretion by kidneys. Impressions: 1. no evidence to suggest rsd. 2. findings in the fight foot may be artifactual due to positioning. Please correlate with plain films. Further investigation with MRI to be determined clinically.

Dr. K referred me to Dr. E at ------

9/3/2014 - 9/13/2014 - Toe seems to tingle a bit less everyday. Not much walking so hard to judge that aspect. Anxiety levels are very high due to CRPS being not well understood and the possible outcomes. Pain levels fairly low, foot felt too warm. No trouble sleeping. Toes slightly red and swollen.

9/13/2014 ~ dr. E at ---- diagnosed with CRPS and I have a nerve block done in right foot. I believe 3 shots of in the postival nerve of steroid kenalog - 10. hcl 1 percent. Before nerve block i feel only a level 1 pain, no pain from any part of the foot being touched. It should be noted that this was in the morning and the mornings are generally a little bit better then at night and this was done in the morning.

9/17/2014 ~ See dr. A at ___ Dr. A (anesthesiology, CRPS specialist) remarks that “i don’t have all the symptoms of CRPS, but he isn’t sure what else it could be”. He suggests two weeks of a lidocaine 5 percent patches to be worn for 12 hours to reduce pain. He also remarked that the right foot was colder, which was interesting because it has always felt warmer to me. Though i didn’t test it at the same time. I have tested the foot daily and i don’t feel a difference. Since the nerve block the foot has had less warmth and swelling.

9/13/2014 (post-nerve) ~ today toe no longer tingles. There have been occasions (1-2) of light shooting pain in (2/10) leg. But not in the last couple days 16th -17th). The toes are stiff and have limited range. The toes will bleach red if I walk on them. The foot will also feel “warm” if i walk on it. For example 30 minutes of walking will result in my foot feeling “warm”. Warm both to my touch and feel warm. It takes about 10 minutes of inactivity (typically I have elevated it) for it to not feel warm or be red.At night the pain discomfort (1/10) might be worse (2/10) or it might simple be that I have nothing else to concentrate on. Toe tingling is rare but happens if i elevate for more than 30 minutes.

9/14/2014 ~ saw another anesthesiologist and CRPS specialists. Dr C diagnosed wtih CRPS type 1. Recommended Lumbar nerve block and Gabapentin.

9/19/2014 ~ No pain, blenching (redness), throbbing, warmth/burning, sweating, sensitivity. I walked for 40 minutes. Squatted light weight. Toes are still stiff but seem to respond well to exercise and are becoming more flexible. Toes have a slight tingle to them. Used a lidocane patch last night and i'm not sure it helped (as i had no pain then as well).
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Phaedra (09-19-2014), Russell (09-21-2014)