You are correct...insurance does NOT like to pay for this. But if you have a documented case for SFN (positive skin biopsy and trial and failure of other treatments) there should be no problem.

They typically will NOT cover IVIG just if you have 4 infection in a year. You must show confirmed/document PID (primary immune deficiency) on lab work...and repeated infections.

IVIG is always in short supply (it's a specialized blood product that requires up to 2000 donors to make ONE dose), so there is strict criteria to get it. Not to mention that the cost is very high. My dose just for PID (which is much lower then dosing for SFN) is about $8,000-$10,000 for one dose each month. Now that I'm starting to get higher doses for neuropathy, that cost will triple each month.

But if you can get it, you might find it's very helpful...as many others have.