Thread: twitchy eyelids
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Old 09-21-2014, 05:51 AM
juliejayne juliejayne is offline
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Location: Dordrecht, Netherlands
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juliejayne juliejayne is offline
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
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Teresa, Suev, thanks to you both. That was my feeling, butI am interested in a couple of things that you said Teresa, not sure if you can elaborate on them.

Quote:
About the only people who can tolerate even a small amount of Mestinon are people with MG; if you can take it without getting violently ill, chances are that you have MG.
Is this true. If so I was not aware of it. My GP has so far refused to do a Mestinon trial, even though I have point blank asked for it.

Quote:
Did your neuro-opthamologist do an ice pack test on your eyes? That seems to be the test that "catches" a majority of MG cases which present with ocular symptoms.
No they didn't. It hadn't occurred to me that the ice pack test might be useful. I had assumed that it only worked for Droopy eye. Until this appointment I hadn't realised that I had blinking eyelids, so hadn't expected ice to help diplopia. Now I will try it and see if if slows the blinking rate.
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