New Member
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Join Date: Sep 2014
Posts: 5
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New Member
Join Date: Sep 2014
Posts: 5
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does this sound like myasthenia gravis?
hi everyone, I'm new to the site, I'm a 28 year old female, married mother of 3. I've been having unusual symptoms my doc thinks probably is MG. i have tested <0.20 for AChR. here is my history… I've had bells palsy 3 times, the last time whilst pregnant 1.5 years ago was severe and lasted 6 months. mri was fine. also while pregnant, my lower leg at the end of the day would ache become heavy and fatigued, the more i used it the weaker it got, but i continued to use it and became fully paralysed but could still feel touch, could not weight bear or wiggle my toes, i lost complete use, but it always "halted when i sat and rested, but progressed quickly with walking around the house, this happen twice with pregnancy then again 2 months ago. the last 10 months i have had extreme dysphagia on and off, which has been depressing it s always worse at night, it progresses through the day. I've had on and off blurred vision for 2 years that no eye doctor can explain. in the last month, my right hand drops things frequently, and i was sending a text with my mobile and my hand stopped working completely for 20 seconds, not a cramp or spasm, it switched off and wouldn't work. doc has me on 10mg mestinon 3 times a day and most times it does help. something else thats interesting, when i seen an eye doctor a year ago and they put the dilating eye drops in that are anticholinergic, and within seconds could not breathe, it was as if my air ways closed 90% and i honestly thought i was going to die. also 2 weeks ago, lasting 4 days,i struggled to breathe, it was as if breathing in and out wasnt working, like suddenly there "was no air" or that my lungs were skipping a beat, like id have 4-5 good breathing in and out then a couple of bad, this lasted 4 days and was terrifying, what are all your thoughts? does this sound like MG? my doc and neuro thinks its very possible.
ps- I've had every blood test there is to rule out loads of other stuff..
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