Oh that's awful. No wonder you're worried. I hope you get some answers from the Neuro when you see them.

Were you ill with any sort of virus or bacterial infection before you started showing these symptoms?

p.s. you could also post in the New members area or the General Health and Rare Disorders Forum.
Sometimes people check those forums and reply if they have an idea of what might be going on.

General health conditions and Rare Disorders Forum
New members introductions Forum