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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Hello IllPn :)
I am sure everyone is different concerning the numbness of the toes. A few of mine are numb but I don't really notice it unless I run in to something with those toes....I wait for it to hurt and.....nothing.....then I can hit them and they have to pull me out of the ceiling.
I have noticed my 2nd toe on each foot moving on their own...weird to watch for sure  My feet LOVE the cold weather. When they get really bad I can walk out onto my porch (it's terracotta) and just stand there.....ahhhhh.....so nice to the bottom of my hurting feet !
I've heard that neuropathy is usually a slow progression over years. When I look back in time I realize that I would come home from working all day, cook, clean up and hit the recliner.....I would look at my toes and think of the athletics foot commercial that shows flames coming off the toes....that is exactly how mine felt.....the next morning I was fine. Little did I know then but this SFN was working on me. I was already determined to be pre-diabetic and was on metformin at the time. I did mention it to my PCP one time and she asked if I wanted anything for it and I said no....wish now I had said yes ! Then came the cancer and 6 rounds of chemo.....a month later it was full on SFN at it's best. Dx'd via skin punch biopsy as having no A and C fibers left in my feet. It's been progressing since then (last chemo treatment was 3.27.13) and is now in my legs, hands and both arms except upper left arm.
Did you not like the actual skin punch biopsy or just the results ? I believe many people have several over the years to determine if the nerves are healing or not. Depending on how long it has been since your test you might want to consider having another one to see if the supplements helped or if not have they gotten worse.
Take care and keep us posted.
Debi from Georgia
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